Ways to meet other users
The benefits of bone anchored hearing systems vary greatly from person to person due to differences in hearing loss as well as listening preferences and lifestyle. A good way to gain insight into what life might be like with Ponto or another type of system is to talk to other users. Below are some useful links for getting connected to other users or user organizations.
The below links are organized in the following groups:
- Bone anchored hearing systems
- Acoustic neuroma and single-sided deafness (SSD)
- Atresia, Microtia, Treacher Collins and Goldenhar Syndrome
- National websites
Bone anchored hearing systems:
BAHA Users Support Forum
The Ear Foundation - BAHA User Support forum (formerly BUSK)
Direct link to online forum for users of bone anchored hearing systems.
The Ear Foundation
UK organization for people with hearing implants.
Bone Anchored Hearing System Forums & User GroupsFacebook - Various BAHA User Groups:
Acoustic neuroma & single-sided deafness (SSD):
Acoustic Neuroma Association
US organization for people with acoustic neuroma and other benign tumors of the cranial nerves
British Acoustic Neuroma Association (Bana UK)
A support charity for those with Acoustic Neuroma.
Acoustic Neuroma Association of Canada (ANAC) Facebook - Various SSD User Groups:
The Acoustic Neuroma Association of Canada is a patient-headed, peer support group.
Atresia, Microtia, Treacher Collins and Goldenhar Syndrome:
Ear Community Facebook - Various Microtia & Atresia User Groups:
The Ear Community is a warm and supportive community for those who have any or all of the following: varying degrees of hearing loss, Microtia, Atresia, Treacher Collins or Goldenhar Syndrome.
A support charity for families and individuals affected by Goldenhar syndrome and related issues.
A support charity for families and individuals affected by Treacher Collins Syndrome.
Yahoo online discussion support group
This community is intended as a forum for people with, and parents of children with Aural Atresia and/or Microtia.
Action on Hearing Loss (formerly RNID).
The largest charity representing the 9 million deaf and hard of hearing people in the UK.
The National Deaf Children's Society (NDCS)
The leading charity dedicated to creating a world without barriers for deaf children and young people.
Dutch forum for people with single-sided deafness.
Dutch website for information on hearing.
Aides Auditives à Ancrage Osseux
The purpose of this site is to give neutral and objective information on bone anchored hearing aids and to create contact between existing and potential users.
Swedish organization for parents and children with hearing implants.
Denmark Facebook - Danish BAHA User Groups:
Danish user organization for people with hearing loss.